Transitioning...

Although we are so happy that Giovanni is finally home, he has had a difficult time making the transition between hospital schedule and home schedule. He has been in sensory overload, making it difficult to "pad" his environment to prevent meltdowns. Little things like the microwave beeping or the dogs barking are causing him to cover his ears and scream. Hopefully that will ease up soon.

As far as the hospital stay goes, we really don't have much information. He didn't have one of his questionable episodes, so I really don't think we learned anything new. He did have some abnormal brain activity detected by the monitoring software, but given how sensitive it is, my guess is that it is artifact. His entire video EEG, all 5 days of it, will be reviewed by an epileptologist for a final determination of findings. So right now we are waiting for the results, which take approximately 2 weeks to get back.

The plan moving forward is to try and record one of these episodes on video so it can be viewed by our local neurologist as well as his specialist in Boston. This is the tough part about epilepsy. It is so unpredictable and not clearly defined, especially given his type of seizures. It is very difficult to determine what are breakthrough seizures and what is sensory/behavior related. Sometimes the behaviors associated with his seizures are so bizarre, that it is difficult to confirm them either way. These are the times when I really wish we had a Magic 8 Ball to give us the answers....